Sunday, 26. April 2015
01. 08. 14. - 16:00
A tragic teenager dubbed 'cling film boy' because of his horrific skin condition has become a sensation in China for his courage.
Liu Liang-chen, 14, suffers from the rare inherited condition epidermolysis bullosa, or EB, where the sufferer's skin breaks out into festering blisters all over his body.
Brave Liu, from the city of Chengdu, Sichuan province, in south-western China, picked up his nickname from his habit of wrapping his entire body in cling film to contain blood, pus and the smell of rotting flesh seeping from his wounds - and ruining his clothes.
Before school every day, the youngster would stand in front of a hot air heater to shrink wrap the film to his body, helping to dry up the secretions.
"If I got dressed without wrapping myself up first, my clothes stuck to the wounds on my skin, causing pain when I took them off," he explained.
The disease has left Liu without any fingernails or eyebrows. He lost all his baby teeth aged three and his adult teeth never developed properly.
Unknown to Liu and his dad - who has been his sole carer since his mother walked out 12 years ago - they were doing the worst thing possible for his condition.
"What he needed was a clean environment and good nutrition which was exactly what he wasn't getting," explained one local expert.
Now Liu stands a chance of a more normal life after his cause was taken up by local media who set up a charity in his name.
It is hoped that the boy from the remote rural area will now have a chance of a more normal life.
Dad Liu Zhao said: "It would be my dearest wish to have my brave boy spend a day in a normal body and to know a life without constant pain, a life where he can sleep an entire night without being woken by so many wounds."
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